| ABOUT
HEALTH GAP (GLOBAL ACCESS PROJECT)
What is Health GAP (Global Access Project)?
The
Health Global Access Project (Health GAP) is an action-oriented
advocacy project created in early 1999 by U.S.-based AIDS and human
rights activists, public health experts, fair trade advocates, and
concerned individuals dedicated to expanding equitable access to
treatment and care for people with AIDS worldwide. We do this by
exposing and challenging obstructionist policies and practices of the
U.S. government, the pharmaceutical industry lobby, multilateral
agencies and multinational corporations which create structural
barriers to access and frustrate efforts to address the global AIDS
crisis comprehensively. We believe that fulfillment of the human right
to life and health for all people living with HIV/AIDS and other
life-threatening diseases must take precedence over all other
considerations in the global response to AIDS.
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Why was Health GAP formed?
Nearly 40
million people worldwide are infected with HIV and 16,000 new
infections occur every day. Developing countries bear more than 90
percent of the global burden of HIV/AIDS. Sub-Saharan Africa alone is
home to 28 million infected people. HIV is exacerbating growing
economic, governance and public health crises simultaneously fueled by
the combined effects of socio-economic, cultural and gender
inequalities, the impact on public infrastructures of structural
adjustment programs (SAPS), and intensified corporate globalization in
the post-colonial period. After two decades of the AIDS epidemic in
Africa, HIV and other communicable diseases such as TB and malaria are
leading causes of early death on the continent. Countries are now
facing not only immediate daunting challenges of caring for huge
numbers of people affected by HIV/AIDS, but long-term catastrophic
economic development impacts on labor forces, educational systems,
communities and families. Elsewhere in the developing world, the
unchecked expansion of the AIDS epidemic could lead to similar
catastrophic public health crises.
During
much of the first two decades of the AIDS crisis, the dominant public
health strategy for addressing the epidemic globally was almost
exclusively focused on HIV prevention. But by the mid-nineties, at
least in wealthy countries of Europe and North America, a paradigm
shift began to occur. Antiretroviral drugs (ARVs) for HIV and
associated opportunistic infections (OIs) had become standard treatment
for HIV in Western Europe and North America. We began to witness
dramatic decreases in rates of death and illness among PLWHAs in these
countries. Confirmation that medical interventions could substantially
reduce cases of mother-to-child transmission of HIV had been
established. The public health prevention benefits of linking voluntary
testing with care and treatment for infected persons had been clearly
established. In essence, HIV prevention and provision of treatment and
care for infected people began to enter strategic public health policy
discussions as inevitably linked components of a comprehensive plan to
end the AIDS epidemic.
But in
the global South, no such shift occurred, despite the efforts of people
with AIDS and treatment activists there to expand access to medicines.
Instead, the AIDS epidemic continued its devastation in parts of
Africa, Latin America and the Caribbean, and Asia. People with AIDS
continued to suffer and die with no access to medicines and with
grossly inadequate health care. Glaring global inequities in HIV
disease burden were scarcely addressed in mainstream global AIDS policy
discussions - neither by governments of wealthy donor nations nor by
the multilateral institutions that they had created to lead the
economic, political and public health development in the post-colonial
global South. Rather, treatment delivery for the vast majority of the
global population of people with AIDS was essentially dismissed as
prohibitively expensive and logistically impossible. HIV prevention
continued to be viewed as the only possible solution to the AIDS
epidemic in the developing world. Serious efforts to challenge the
incongruity of approaches to the epidemic in the global North and South
were not advanced, and dominant public health responses to the
escalating global AIDS crisis were notable primarily for their inertia.
By the
summer of 1998, when the 12th International AIDS Conference convened in
Geneva, people with AIDS from developing countries and allies from both
the North and the South had found this inertia intolerable, and unjust.
It had become immoral and unconvincing to talk about HIV prevention as
the only solution to the global AIDS crisis when 40+ million people
were already infected Ð most of who were in resource-poor countries
where their illness and premature deaths were reversing decades of
development and robbing those countries of any future development. Only
treatment and care could intervene in that situation.
In
Geneva, where conference participants gathered under the slogan
"Bridging the Gap", access to treatment and care was addressed neither
systematically nor comprehensively. Scientists and clinicians from the
wealthy nations were barely present at sessions where AIDS in poor and
developing countries were thematic, and plenary session debates were
devoid of reference to expanding treatment access or even how the
global pandemic could be slowed in light of new treatments. At the same
time, the pharmaceutical industry, which to a considerable extent has
underwritten these global gatherings for the past decade, again spent
millions of dollars to entertain and influence doctors and researchers.
The conference ended with no proposals on how to "bridge the gap"
between the North and South.
People
with AIDS who were being denied access to treatments and care, and
their activist allies from around the world, faced with such inertia,
realized that only social mobilization would spark an urgently needed
shift in the global response to AIDS. It had, after all, been social
activism which catalyzed advances in science, medicine and health care
delivery which led to the introduction of treatments and care for
people with AIDS in the North. A decade of sustained social and
political pressure by people with AIDS on drug companies, public health
institutions, and governmental agencies delivered ARVs and other
effective medicines to infected people in Western Europe and North
America. The science and medical interventions now existed, but it
would take a worldwide social movement for challenging political and
economic barriers to ensure that to equitable global access to
treatment and care would become a reality.
The
formation of Health GAP in early 1999 was the U.S.-based activist
response to the international call for global social action.
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Who formed Health GAP?
Health
GAP was formed in early 1999 by Dr. Alan Berkman, a veteran civil
rights activist and clinician in New York City, who brought together
fair trade lawyers and economists, progressive clinicians, human rights
activists, international health and development advocates, and direct
action-oriented AIDS activists willing to confront U.S. government
trade policies and the drug lobby. Individuals from groups and
institutions including the Columbia Mailman School of Public Health,
ACT UP New York, ACT UP Philadelphia, Doctors without Borders, The
Consumer Project on Technology, Essential Action, AIDS Treatment News,
Mobilization Against AIDS International, the International Gay and
Lesbian Human Rights Commission, Search for a Cure, and others
interested in forging a U.S.-based action-oriented strategy toward
reducing barriers to equitable global access to treatment and care were
initial founders of Health GAP. Together, and in dialogue with
activists from the South, this group forged the basis of a new
synergistic strategy toward the global epidemic rooted in ideals of the
human right to life and health, and committed to social mobilization as
key to confronting the epidemic. Health GAP's specific contribution to
the global treatment access movement were identified as:
- educating
others and building a broad-based social mobilization effort
in the U.S. to challenge obstructionist U.S. policies of the U.S.
government in particular,
- exposing
U.S. government supported international trade policies at the
multilateral level which were impeding access and advocating for policy
alternatives,
- providing
support for South-based activist campaigns and actions
focused on their own government policies and practices, as well as the
policies and practices of multinationals operating in their countries,
and
- engaging
with international treatment access activists in coordinated
actions, activities and campaigns directed toward obstructionist
multilateral policies, the pharmaceutical industry, or multinational
corporations.
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What does Health GAP do?
We campaign for drug access and the
resources necessary to sustain access for people with HIV/AIDS across
the globe. We engage in direct action and grassroots mobilization, work
with allies in the global South and in the G-7 countries to formulate
policies that promote access, mobilize grassroots support for those
policies, and confront governmental policy makers, the pharmaceutical
industry, international agencies, and multinational corporations when
their policies or practices block access.
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Current
Health GAP campaigns include:
Advocating for AIDS treatment
programs and the Global Fund to Fight AIDS, TB, and Malaria: This
fund, first called for by U.N. Secretary General Kofi Annan, holds the
promise of funding AIDS treatment programs in developing countries if
adequately funded and operated on a policy which prioritizes filling
the gaps. Much more needs to be done in order to address the historical
and deadly neglect of multilateral and bilateral assistance in caring
for those already infected with HIV. Since the beginning of the
epidemic and, still to this day, a single U.S. government donated
dollar has yet to be spent on antiretroviral treatment in Sub-Saharan
Africa.
Reforming US and world trade
policies: Health GAP has led a successful campaign to change U.S.
trade policies that punished African countries that attempted to
produce or import affordable generic AIDS drugs. In addition to
targeting threatened use of trade sanctions, Health GAP has campaigned
against the international intellectual property regime (the WTO TRIPS
Agreement) and national patent laws that have restricted access to high
quality affordable medicines. However, the US government continues to
prioritize pharmaceutical profits and oppose generic competition
through its influence over the WTO, United Nations institutions,as well
as through bilateral trade agreements with poor countries: including
the Chile Trade Agreement, Central America Free Trade Agreement
(CAFTA), and Free Trade of the Americas (FTAA). The World Trade
Organization, while recently reaffirming the primacy of public health
over profits of pharmaceuticals, in its Doha Declaration, still needs
to acknowledge and protect the rights of countries to manufacture and
export generic versions of patented drugs into developing countries
with limited production or market capacity whether they have patents or
not.
Challenging Multinational
Corporations to provide HIV/AIDS treatment: While Health GAP
believes the onus of protecting public health is upon the public
sector, the private sector has much to bear on the continued spread and
neglect of HIV among communities in which they operate in developing
countries. Corporations, such as Coca-Cola and the huge mining concern,
Anglo-America, continue to flout the most fundamental need among HIV
positive workers in the developing world: the urgent need for access to
affordable, life-extending HIV treatment and care. Working with
international and domestic allies Health GAP challenges multinational
corporations to fulfil an obligation to implement comprehensive
HIV/AIDS workplace policies that include a provision for AIDS treatment
for workers and their dependents.
Fighting for debt cancellation:
Foreign debt handicaps the ability of the most affected countries to
confront the AIDS epidemic. We work with global allies to win full
cancellation of debt owed the IMF and World Bank by poor countries,
using the resources of those financial institutions. We oppose
structural adjustment programs and similar requirements that weaken
public health systems, obstruct treatment access, and accelerate the
spread of HIV.
Pressuring drug companies: The
pharmaceutical industry maintains its extraordinary profits in rich
countries, and sabotages poor countries' efforts to produce or import
affordable generic drugs--although drug companies generate little-to-no
profit in poor countries. We expose and actively oppose these efforts
and will build support for poor countries' right and responsibility to
care for their people.
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How is Health GAP structured?
Health
GAP is a primarily volunteer-driven project led by a
consensus-driven National Steering Committee of 20-25 active
"core" individuals drawn from the U.S.-based AIDS activist,
public health, human rights, and fair trade communities. Health
GAP core members operate as a steering committee which meets
through twice monthly national conference calls and bi-annual
strategic planning meetings. Campaign, mobilization, advocacy and
development activities are coordinated by three salaried program
directors. Health GAP is a registered 501(c)3 non-profit AIDS
advocacy organization based in New York, NY. Program directors
are based in New York and Philadelphia. Health GAP's National
Steering Committee members are based in several East and West
Coast states including New York, Pennsylvania, Massachusetts,
Washington D.C., Vermont and California.
National
Steering Committee:
- Brook
Baker, Northeastern University, Boston
- Sean
Barry,
Community HIV/AIDS Mobilization Project (CHAMP), NYC
- Alan
Berkman, MD, Mailman School of Public Health, NYC
- Aaron
Boyle, ACT UP/NY
- Jen
Cohn, ACT UP/Philadelphia
- T.
Richard Corcoran, NYC
- Paul
Davis, Health GAP, Philadelphia
- Jose
De Marco, ACT UP Philadelphia
- Naina
Dhingra, Advocates for Youth (AFY), DC
- Allison
Dinsmore, ACT UP Philadelphia
- Mauro
Guarinieri,
Global Network of People Living with HIV/ AIDS (GNP+)
- Jamila
Headley,
Student Global AIDS Campaign (SGAC), VT
- Kris
Hermes, San Francisco
- David
Hoos, MD, Columbia University MTCT+, NYC
- Amanda
Lugg, African Services Committee (ASC), NYC
- Sharonann
Lynch,
Medicins sans Frontieres (MSF), Lesotho
- Mark
Milano, ACT UP/NY
- Donna
Rae Palmer, Mobilization Against AIDS,
International (MAAI), San Francisco
- Jacqui
Patterson, International Health Consultant, DC
- Asia
Russell, Health GAP, Philadelphia
- Trish
Siplon, Saint Michael's College, Burlington VT
- Eustacia
Smith, ACT UP/NY
- Rob
Weissman, Essential Action, DC
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Where
does Health GAP's funding come from?
Health GAP's activities are funded by
private foundations, donor-advised giving, and individual contributors.
It is Health GAP's policy to accept no funding from the pharmaceutical
industry or from government sources. Current funders include: The
Public Welfare Foundation, Sonya Staff Foundation, the Ford Foundation,
and donor-advised funds from the Vanguard Charitable Trust. Numerous
individual contributors also support our work as well. We are grateful
for all such assistance as well as the in-kind support of our allies in
the struggle for global treatment access.
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What
does Health GAP's budget support?
Health
GAP's budget is $380,000.00 annually. Funds support staff costs
including (3) full-time advocacy coordinators, (1)part-time program
assistant, and short term campaign related contractors; program costs
including communication costs, travel, direct assistance to South-based
treatment advocates and direct action campaign costs. Over eighty-six
percent of Health GAP funds go directly toward program-related expenses
and to support our dedicated staff. Health GAP is committed to keeping
administrative overhead and fundraising expenses as low as possible.
Our breakdown of expenses by category is as follows:
42%
staff and contractors
46% program expenses
7% administration
5% fundraising
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How
do I contact Health GAP?
Health GAP staff contact
information:
Paul Davis
Advocacy Policy Director
215-833-4102
Email: pdavis@healthgap.org
Asia Russell
International Policy
Director
267-475-2645
Email: asia@healthgap.org
To request copies of publicly
available financial statements, please write to:
Health GAP
20 E. 9th St., #18A
New York, NY 10003
You may also request information via
email at info@healthgap.org
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|
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The
HIV/AIDS epidemic is a global catastrophe that kills millions each year
and undermines the social fabric and economies of scores of countries.
The
treatments that prolong life and relieve suffering are not available to
the vast majority of those infected with HIV. Health GAP believes
access to life-sustaining medication is a human right for all, not just
those living in wealthy countries.
We
believe that increasing treatment access will bring hope and help
sustain the health of those infected and will promote health
infrastructure, improve HIV prevention efforts and strengthen
provisions for care and support.
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