| HEALTH
GAP ACCOMPLISHMENTS
Who We Are
The
Health Global Access Project (Health GAP) is an action-oriented
advocacy group created in early 1999 by U.S.-based AIDS and human
rights activists, public health experts, fair trade advocates, and
concerned individuals dedicated to achieving equitable access to
treatment and care for people with AIDS in developing countries. We do
this by exposing and challenging obstructionist policies and practices
of the U.S. government, the pharmaceutical industry, and multilateral
institutions, which create structural barriers to access and frustrate
efforts to address the global AIDS crisis comprehensively. We also work
to ensure that adequate resources are raised to provide universal
access to treatment and care and to increase health care capacity, at
the same time that we monitor program implementation to increase
efficacy, efficiency, and equity. We believe that fulfillment of the
human right to life and treatment for all people living with HIV/AIDS
(PLWHAs) should be a first-order priority of the global response to
AIDS.
What We've Done
When
Health GAP was founded in 1999, the idea of affordable treatment
in developing countries was seen as impossibly utopian. Since then,
Health GAP has been an indispensable player in the effort to make
equitable global access to treatment and care for HIV/AIDS a reality.
Our first work was devoted to calling attention to the plight of
millions of people without access to treatment, and to the reasons why
access to affordable medications was blocked. Later, we worked to
influence policies and resource allocations of the United States and
other developed countries at the same time that we advocated policy
reforms by international bodies including the World Health
Organization, the Joint United Nations Program on HIV/AIDS (UNAIDS),
the World Trade Organization, the International Monetary Fund (IMF) and
World Bank, and the Global Fund for AIDS, Tuberculosis and Malaria
(Global Fund). At all times, we have sought to do this work in
solidarity and in alliance with people living with HIV/AIDS and
treatment activists in the Global South and throughout the world.
This
work has been accomplished over a five-year period through a variety of
campaigns. Below is a summary and discussion of six interrelated goals:
raising the profile of global HIV/AIDS on the agendas of international
organizations and, especially, the United States government; mobilizing
resources in support of treatment and related activities; expanding
treatment access; breaking down legal barriers and intellectual
property rules that interfere with developing countries' production and
procurement of affordable generic medications; supporting activist and
PLWHA groups in developing countries; and serving a catalyst, "change
agent" role within the advocacy community of the Global North. This
discussion is not meant to be exhaustive, but rather to highlight some
areas of work and victories where Health GAP has had a major role.
Raising the Profile of Global AIDS
Health
GAP has been a critically important actor in the drive to raise
the profile of the global AIDS crisis on both the international and
domestic policy agenda since the organization was founded. We have
drawn on both our activist roots and the world-class expertise of our
founding and subsequent members to pursue a strategy combining both
grassroots protests and advocacy, and high-level consultation and
negotiation. Our work in this regard puts us in league with much
larger, older and more heavily-resourced organizations.
Health
GAP's pivotal role has been cited in numerous publications that have
been written on global AIDS, and specifically on global treatment
access. Recent examples include: Global AIDS: Myths and Facts by Irwin,
Millen and Fallen (2003); The Invisible People by Greg Behrman (2004);
Moving Mountains by Anne-Christine d'Adesky (2004); and AIDS and the
Policy Struggle in the United States by Patricia Siplon (2002). And in
"At the Crossroads: A study of Federal HIV/AIDS Advocacy", a report
commissioned by the Ford Foundation, Derek Hodel cited Health GAP
(together with ACT UP and the Global AIDS Alliance) as "strikingly"
dominant in their media work (p. 8).
The
first major project undertaken by Health GAP in 1999-2000 opened the
way to a major policy turnaround by the Clinton Administration on
access to
affordable HIV/AIDS medications in Africa, namely the de-escalation of
trade pressure by the Clinton Administration against the South African
government because of its effort to access more affordable
medcines. This campaign, which resulted in the passage of an
Executive Order prohibiting
trade activity that would decrease African countries' ability to utilize
TRIPS-compliant measures to access more affordable medicines elevated
the African AIDS and access-to-mediicnes issues issue from total
obscurity to ones receiving major media coverage. More recently, our
campaign work has expanded, as discussed further below, to include
greatly increased spending on global AIDS, removal of intellectual
property barriers for countries
seeking to access affordable medicines, debt cancellation, and
expansion of health care capacity in developing countries.
Mobilizing Resources
Recognizing
that the lack of resources constitutes a separate barrier
to access of treatment and care, Health GAP joined with other groups to
pressure the United States government and other governments of wealthy
countries as well as the United Nations system to initiate major
programs to provide to support treatment and care for the millions who
need it. After prodding by global AIDS activists, including Health GAP,
UN Secretary General Kofi Anan at a announced the formulation of the
Global Fund to Fight AIDS, TB, and Malaria at a series of international
meetings in Abuja, Nigeria, New York City and Genoa, Italy in 2001.
Similarly, the Presidential AIDS Initiative, crafted by a small group
of organizations including Health GAP, served as the blueprint to the
5-year 15-billion dollar President's Emergency Plan for AIDS Relief
(PEPFAR), announced by President George W. Bush during his 2003 State
of the Union address.Having advocated for the creation of the Global
Fund, Health GAP pushed the United States government to recognize its
growing needs and the U.S.'s obligation to pay its equitable share of
Global Fund resources. Through work in coalition with key
Washington-based advocacy organizations and with key grassroots
constituencies, Health GAP continues to support this critical
multilateral effort.
Sustainability
of the work aided by the Global Fund and PEPFAR will require
ever-increasing financial commitment from developing country
governments. To enable this commitment, Health GAP has been a stalwart
ally in the international campaign to Drop the Debt of these countries.
This work has spanned more than five years, from incorporating the
message into demonstrations and rallies in 2000 and 2001 up to recent
work with European allies in preparation for the 2005 G-8 meeting in
Gleneagles, Scotland, which culminated in successful pressuring of
world leaders to drop the debt of 18 heavily indebted nations ($40
billion, freeing up $1.5 billion/year for spending on health and
education) as well as the global call for universal access to HIV/AIDS
treatment by 2010.
Expanding Treatment Access
That committing
resources to procure antiretroviral medications in developing countries
is desirable, indeed obligatory, seems obvious now. Yet only a few
years ago the global consensus — among donor governments, multinational
entities including the World Bank and public health experts Ð was
that it treatment was impossibly expensive to and impossible to
implement HIV-prevention was believed to be the only option. Expansion
of treatment access first required a sea change in attitudes about both
the affordability and feasibility of treatment. Heavy lobbying and
advocacy by Health GAP and a coalition of other groups at all levels —
among government officials, diplomats, and international organizations
and through major press campaigns Ð brought about this paradigm
shift in perception. During the period between the 2000 International
AIDS Conference in Durban, South Africa and the 2001 United Nations
General Assembly Special Session (UNGASS) meeting on AIDS in New York
City, this was a major focus of Health GAP's work, and the turnaround
in attitudes marked both a major success and a foundation upon which to
build future initiatives.
These
later initiatives have taken a wide variety of forms but include, among
others: the insistence that the new Global Fund as well as the PEPFAR
place equal emphasis on providing resources for treatment as on
prevention: pushing these programs to make use of generic medications
and bunk procurement mechanisms to maximize the number of people who
can be treated with available resources; calling for technical
assistance to help developing countries rapidly scale up existing
programs; and organizing for treatment literacy to ensure that people
living with HIV understand their medication regimes, adverse effects,
and the crucial importance of adherence.
Breaking
Down Intellectual Property and other Legal Barriers to Affordable
Medications
A key
goal that has guided Health GAP's actions since its founding is the
need for countries to be able to legally produce and/or import the most
affordable quality drugs possible, most often generics. This ideal has
been repeatedly blocked by intellectual property rules (patent rights
and data protection rules) in so-called free trade agreements. Thus, a
defining role of Health GAP has been to advocate against global,
regional, and bilateral trade agreements that elevate intellectual
property protections over public health needs.
Beginning
in 1999, we targeted the WTO multilateral Agreement on the
Trade-Related Aspects of Intellectual Property Rights (TRIPS), as well
as the bilateral pressure the US government and pharmaceutical
companies were placing on South Africa and other developing countries.
By 2000, we were also protesting the US unilateral threats of sanctions
against the Dominican Republic, the Philippines, Thailand and Argentina
and in 2001 we protested a U.S. WTO complaint against Brazil. Later in
2001, Health GAP was an important member of the broad civil society
coalition that won a key victory at the WTO Ministerial Meeting held in
Doha, Qatar. The resulting "Doha Declaration" was a critical
interpretation of TRIPS that explicitly prioritized public health over
intellectual property, and that emphasized the obligation of
governments to provide access to medicines for all.
The
struggle between pharmaceutical companies seeking to extend
intellectual property protections for their products and developing
countries seeking to provide affordable and universal treatments for
their citizens is ongoing. The strategies of the pharmaceuticals and
the governments that support them take many forms in international,
regional and bilateral trade agreements. The U.S. Trade Representative
has sought heightened intellectual property protections and elimination
of existing lawful flexibilities for accessing more affordable
medicines in multiple venues including the Free Trade Agreement of the
Americas, the Central American Free Trade Agreement (pending), the
Andean Free Trade Agreement, the Southern African Custom Union Free
Trade Agreement and many, many others. In these agreements, the U.S.
seeks not only to extend patent rights and reduce TRIPS-compliant
flexibilities, it is also seeking to erect a new barrier called data
exclusivity that will delay or prevent registration/marketing approval
of bioequivalent generic medicines. In each of these contexts, Health
GAP has worked in alliance with civil society and activist communities
in a wide variety of countries to oppose the expansion of drug
companies' monopoly rights.
Supporting Developing Country Activists
Our
colleagues in the global south, including people living with and
marginalized populations at risk of HIV/AIDS, have achieved
inspirational victories and must remain in the forefront of global
campaigns against the pandemic. Health GAP has sought to support
activist colleagues and organizations in a variety of ways. Two notable
examples occurred at International AIDS Conferences, first in Durban,
in 2000 and then in Bangkok in 2004. In both cases, Health GAP sent
staff and volunteers in advance of the meetings to help support the
South African and Thai activists with strategizing, logistics and
organizing. These efforts helped to make the issues raised by local and
national groups in the host countries Ð treatment access in the
first case and government persecution of injection drug users in the
second Ð defining foci for the conferences.
Health
GAP also seeks to support our colleagues in responding to requests for
both capacity building assistance and participation in actions called
by other activist organizations. For example, in the spring of 2001,
Health GAP helped coordinate a global day of protest against a
drug-company lawsuit seeking to enjoin South African legislation that
would have permitted easier access to more affordable medicines, a
protest that resulted in the withdrawal of the lawsuit a few days
later. In August 2002, Health GAP was one of a small number of northern
organizations invited to travel along with over seventy delegates from
twenty-one African countries to Cape Town, South Africa to help launch
the Pan-African HIV/AIDS Treatment Access Movement (PATAM). In summer
2004, when South Africa's Treatment Action Campaign called for a global
day of protest against Bush administration AIDS policies, Health GAP
worked with a small number of other US-based organizations to
coordinate rallies at Bush campaign headquarters across the country. In
November 2004, Health GAP staff worked with grassroots groups in Kenya
and Tanzania to organize over 150 AIDS activists and people living with
AIDS to protest the Global Fund Board meeting being held in Arusha,
Tanzania. And in June 2005 Health GAP staff returned to Nairobi to
investigate treatment delivery there, and explore the possibility of
further collaboration in new campaigns.
In
addition to supporting international calls for solidarity from
activists in Africa, Health GAP also supported campaigns in Brazil,
Thailand, and India, including those related to 2005 amendments to the
Indian Patent Act and the threat of Brazil to issue lawful compulsory
licenses for AIDS medicines. Two of Health GAP's volunteers are
internationally recognized experts on intellectual property rights and
trade issues and have consulted extensively with developing countries
on these issues.
Catalyzing the Global North Advocacy Community
Health
GAP has played an important leadership role within the Global
North advocacy community. Since our first campaigns dedicated to making
the perceived impossibility of universal treatment into an imperative,
Health GAP has developed a specialized function of identifying issues
that stand at the juncture of pressing need and political opportunity
and bringing media and activist pressure to bear. We have sought to
become, as one observer put it, "the crowbar in the crack". Health
GAP's small size, highly qualified and engaged volunteers, and unique
organizational structure mean that it is very cost efficient, adaptable
and effective. It has also meant that Health GAP has needed to hone its
organizational ability to serve a catalyzing role within the AIDS
advocacy community in mobilizing and supporting much larger coalitions
to provide the human and financial resources for multi-country,
large-scale campaigns.
Domestically,
Health GAP has helped bring together activists and advocates from a
variety of constituencies, including student groups, AIDS activist
organizations, human rights groups, and faith-based communities to work
on projects ranging from the Coca-Cola Treat Your Workers Campaign to
the 04 Stop AIDS Campaign in 2004. Internationally, it has performed a
similar function, facilitating the organization of the advocacy
community within the global north. Such facilitation is sometimes
short-term, as when Health GAP has provided the communications tools
and staffing for global or regional days of action involving events
coordinated across whole continents, and sometimes longer term, as when
Health GAP helped European colleagues organized the Fund the Fund
Campaign designed to pressure the leadership of all wealthy nations to
provide the necessary support for the Global Fund
Moving Forward
In
large part as a result of victories from previous campaigns, Health
GAP must now pursue two strategies. The first is to continue to
aggressively advocate for new and bold initiatives for programs and
resources to stem the raging global pandemic. The second is to monitor
the programs that have already been created to ensure that they are
being funded and implemented in ways that provide cost-effective, high
quality treatment and services to the largest number of people
possible, and in ways that fully respect and empower the communities
they are intended to serve. In particular, Health GAP emphasizes
equitable access of people of color, women, children, rural populations
and disfavored constituencies including injecting drug users, sex
workers, and men who have sex with men.
New Initiatives
A key
Health GAP strength is its willingness to extend the "politics of the
possible." Health GAP is known for pushing the envelope Ð in
demanding treatment in developing countries when others thought it
impossible, in proposing unprecedented programs, and in seeking funding
levels which were initially denigrated, then ultimately adopted by
donors. As treatment programs continue to unroll through the Global
Fund, PEPFAR, and other programs, new major challenges are emerging
that, if left unaddressed, threaten to undermine the progress of
treatment that has occurred over the last several years.
One
such challenge, particularly in sub-Saharan Africa, is the shortage of
health care workers and health system infrastructure needed to
administer newly expanded treatment programs. This shortage has several
sources, including: insufficient funding for educational and training
programs for health care professionals, the "brain drain" of these
professionals to developed countries in search of higher salaries to
sustain their families, and the loss of profession to HIV/AIDS. In
addition, international financial institutions, the World Bank and the
International Monetary Fund, impose public sector spending limits that
prevent rehabilitation and expansion of failed health systems in
developing countries. Solutions to the health care capacity problem
will need to be similarly multifaceted, requiring both more money and
policy changes that will allow investment in public health sector
reform and the employment of community health workers at the front line
of treatment and care. In response to this health systems capacity
crisis, in 2005 Health GAP joined forces with several other
organizations to begin a new Health Care Workers Campaign.
An
additional emerging crisis involves orphans and vulnerable children.
The impact of HIV/AIDS on children, particularly because of the loss of
parents and the infection of children themselves, is enormous,
especially in sub-Saharan Africa. As one of the most vulnerable
populations affected by the pandemic, there is an urgent need for broad
and comprehensive initiatives to deal with this crisis. Health GAP is
exploring the dimensions of the problem, with an eye to finding a way
to contribute that optimizes its skills and focus areas. One of the
critical problems involved with providing treatment for children with
AIDS is that there are few pediatric formulations of AIDS medications,
and fewer still that are remotely affordable. Thus, Health GAP is
considering launching a Pediatric AIDS Campaign with other
organizational partners.
Maximizing Past Achievements
The
global treatment access movement, within which Health GAP is an
acknowledged leader, has come a long way since 1999. Yet
accomplishments Ð whether in the form of international agreements,
important new initiatives, or major concessions Ð rarely translate
into improved realities for the people most affected by them without
vigilant and continuous pressure and monitoring for efficient,
compassionate and informed implementation. Most of Health GAP's work in
its earliest years was devoted to reversing the international consensus
opposing universal AIDS treatment and to securing commitments from the
US and other donors to help make such treatment possible. The
accomplishment of these goals, however imperfect, places Health GAP in
the position of working to monitor and expand upon what has been
achieved.
Thus, a
number of current and potential campaigns are designed to perform these
functions of monitoring and expansion of previous gains. To continue to
grow the grassroots network that was begun with the work of the 04 Stop
AIDS Campaign, Health GAP has been an active organizing partner in the
Campaign to End AIDS, a U.S. nationwide domestic initiative begun in
May 2004 that is organizing caravans of AIDS-affected individuals to
travel throughout the country in fall 2005 to culminate in a week of
political activity in Washington, DC in October.
Our
work on the legal barriers to accessing affordable medications
continues through various projects, including our advocacy against
adoption of stringent intellectual property regimes through proposed
free trade agreements between developing countries and the US. Ongoing
campaigns also including tracking the policies and use of resources by
PEPFAR and the Global Fund, and promoting greater resources and better
policy implement for scaling up human resources for health at the
country level. This work expands on Health GAP's goal to work in close
cooperation with developing country allies by allowing us to work in
partnership with activist groups in East Africa. The first of these
campaigns, the PEPFAR WATCH Project, enables Health GAP to work in
conjunction with both another US-based advocacy group, the Center for
Health and Gender Equity (CHANGE), and a number of grassroots
organization in Kenya, Tanzania and Uganda, to track and report on the
implementation and impact of PEPFAR programming for treatment and
prevention in East Africa. Fix the Fund provides capacity-building and
strategic support for groups to identify problems of, and advocate for
solutions to, the implementation of grants received by these
governments from the Global Fund. Health GAP also continues to work on
placing the issues of health care worker shortages squarely on the
international community's global HIV/AIDS agenda.
Since
our founding in 1999, there has been significant progress in the fight
for global treatment access. Hundreds of thousands of people in
developing countries have access to treatment that did not exist five
years ago, and the money made available from bilateral and
international donors has multiplied from millions to billions of
dollars. Yet 5.5 million people are still without treatment, and the
resources that have been made available remain a fraction of what is
required. As we move forward in the struggle against the global crisis
that is the HIV/AIDS pandemic we will continue to rely on our founding
organizational characteristics Ð openness to a wide variety of
advocacy tactics and strategies, careful and critical analysis of AIDS
treatment policy, and above all, a passionate commitment of staff and
volunteers to our goals.
Health
GAP is administered by Mobilization Against AIDS International
a 501(c)3 tax-exempt non-profit organization
Health GAP Timeline
Direct Actions, Advocacy, and Response
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GIVE TO HEALTH GAP
. . . . . . . . . . . . . . . . . . . . .
"No
more than the Germans in the Nazi era, nor more than white South
Africans during apartheid, can we at this conference say that we bear
no responsibility for the 30 million people in resource-poor countries
who face death from AIDS unless medical care and treatment is made
accessible to them." -- Justice Edwin Cameron of South Africa,
XIII
International AIDS Conference in Durban
. . . .
. . . . . . . . . . . . . . .
HOW
YOUR GIFT CAN HELP
- $
100 - transports activists from Philadelphia or NY to Washington DC so
that they can sit across th table from the US Trade representatives and
hold
them accountable to the line that was drawn at the WTO meeting in
Qatar,
where it was acknowledged that the rights of public health need to be
respected within the agreement of Trade and Intellectual Properties
Rights.
- $ 500
- pays for most of a month's cell phone bills for our small staff of 3
who sometimes have to make press calls from such places as Qatar after
having spent months trying to negotiate our way into those meetings. We
had
2 Health GAP members who were amongst only 2 dozen US activists who
were
allowed into Qatar. They spent 23 hours a day relentlessly pushing so
that
the agreement would be reached.
- $ 1000
- is what it costs to bring a packed busload of low-income people
living HIV and their loved ones from Philadelphia to protest in
Washington
DC and hold the government accountable for standing in the way of
treatments
that they have seen keeping their neighbours and loved ones healthy. It
pays
for the bus bills, food for the day and transport tokens. This enables
us to
reduce the barriers that stop people from protesting on the issues that
impact them. We can often fill 12 to 15 buses for each protest and
often our
largest barrier to bringing people out to protest is not the interest,
it's
the cost.
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